Clinical Studies: Current Study Protocol
Patient enrollment criteria for our 12 CHSS research cohorts are listed within this section.
For detailed documentation including IRB templates, amendments as well as Data Use Agreement templates please see here.
Please note we are moving towards a Registry model. If you are interested in participating in a study, please contact the CHSS Center for Research and Quality directly at: chss.dc@sickkids.ca so we may discuss the study onboarding process with you.
View current enrollment numbers
The website is undergoing updates and some links and features may not be available.
| Diagnostic Cohort | Institutions | Accrual |
| Complete Transposition | 24 | 1985-89 |
| PA/IVS | 33 | 1987-97 |
| Interrupted Aortic Arch | 33 | 1987-97 |
| Coarctation of Aorta | 36 | 1990-93 |
| Aortic Valve Atresia | 26 | 1994-2000 |
| Critical Aortic Stenosis | 28 | 1994-2000 |
| Tricuspid Atresia | 42 | 1999-present |
| Pulmonary conduit | 29 | 2002-2014 |
| Critical Left Heart Obstruction | 29 | 2005-2019 |
| Anomalous Aortic Origin of Coronary Artery | 55 | 2009-present |
| Atrioventricular Septal Defect | 32 | 2012-present |
| Ebstein Anomaly | 1 | 2019-present |
| Total | 78 | 1985-present |