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CHSS Center for Research & Quality
Publications

Introduction
The results of CHSS studies are presented at international meetings that are attended by pediatric cardiologists and congenital heart surgeons from around the world. In addition the details of each study and analysis are submitted to scientific medical and surgical journals and are published after successful peer review. Published manuscripts are available on our website below. Please contact the CHSS Center for Research and Quality for a copy of any of the publications.

Anomalous Aortic Origin of a Coronary Artery (AAOCA)
Aortic Valve Atresia (AVA)
Aortic Valve Stenosis (AVS)
Atrioventricular Septal Defect (AVSD)
Background papers about the CHSS Center for Research and Quality
CHSS Academic Impact – J. Jacobs
Coarctation of the Aorta
Interrupted Aortic Arch (IAA)
Left Ventricular Outflow Tract Obstruction (LVOTO)
Outcomes Analysis and Data Process for Clinical Decision Making
Pulmonary Atresia with Intact Ventricular Septum (PAIVS)
Pulmonary Conduit (PC)
Transposition of the Great Arteries (TGA)
Tricuspid Atresia (TA)
UVR-SA Decision Tool (Critical Aortic Stenosis Calculator)

Anomalous Aortic Origin of a Coronary Artery (AAOCA)

  1. Brothers JA, Gaynor JW, Jacobs JP, Caldarone C, Jegatheeswaran A, Jacobs ML; Anomalous Coronary Artery Working Group. The registry of anomalous aortic origin of the coronary artery of the Congenital Heart Surgeons' Society. Cardiol Young. 2010 Dec;20 Suppl 3:50-8. doi: 10.1017/S1047951110001095.

  2. Poynter JA, Williams WG, McIntyre S, Brothers JA, Jacobs ML; Congenital Heart Surgeons Society AAOCA Working Group. Anomalous aortic origin of a coronary artery: a report from the Congenital Heart Surgeons Society Registry. World J Pediatr Congenit Heart Surg. 2014 Jan 1;5(1):22-30. doi: 10.1177/2150135113516984.

  3. Poynter JA, Bondarenko I, Austin EH, DeCampli WM, Jacobs JP, Ziemer G, Kirshbom PM, Tchervenkov CI, Karamlou T, Blackstone EH, Walters HL 3rd, Gaynor JW, Mery CM, Pearl JM, Brothers JA, Caldarone CA, Williams WG, Jacobs ML, Mavroudis C; Congenital Heart Surgeons’ Society AAOCA Working Group. Repair of anomalous aortic origin of a coronary artery in 113 patients: a Congenital Heart Surgeons' Society report. World J Pediatr Congenit Heart Surg. 2014 Oct;5(4):507-14. doi: 10.1177/2150135114540182.

  4. Lorber R, Srivastava S, Wilder TJ, McIntyre S, DeCampli WM, Williams WG, Frommelt PC, Parness IA, Blackstone EH, Jacobs ML, Mertens L, Brothers JA, Herlong JR; AAOCA Working Group of the Congenital Heart Surgeons Society. Anomalous Aortic Origin of Coronary Arteries in the Young: Echocardiographic Evaluation With Surgical Correlation. JACC Cardiovasc Imaging. 2015 Nov;8(11):1239-49. doi: 10.1016/j.jcmg.2015.04.027.

  5. Meza, JM; Elias, ME; Wilder, TJ; O’Brien, JE; Kim, RW; Mavroudis, C; Williams, WG; Brothers, J; Cohen, MS; McCrindle, BW; Congenital Heart Surgeons’ Society. Exercise restriction is not associated with increasing body mass index over time in patients with anomalous aortic origin of the coronary arteries. Accepted by Cardiology in the Young on March 11, 2017. Cardiol Young. 2017 May 2:1-7. doi: 10.1017/S104795111700066X. PMID: 28460658. Disclaimer: This Accepted Manuscript is available only for viewing and downloading for private research and study only.

  6. Jegatheeswaran A, Devlin PJ, Williams WG, Brothers JA, Jacobs ML, DeCampli WM, Fleishman CE, Kirklin JK, Mertens L, Mery CM, Molossi S, Caldarone CA, Aghaei N, Lorber RO, McCrindle BW; Outcomes after anomalous aortic origin of a coronary artery repair: A Congenital Heart Surgeons' Society Study. J Thorac Cardiovasc Surg. 2020 Sep;160(3):757-771.e5. doi: 10.1016/j.jtcvs.2020.01.114.

  7. Jegatheeswaran A, Devlin PJ, McCrindle BW, Williams WG, Jacobs ML, Blackstone EH, DeCampli WM, Caldarone CA, Gaynor WJ, Kirklin JK, Lorber R.O, Mery CM, St. Louis JD, Molossi S, Brothers JA. Features associated with myocardial ischemia in anomalous aortic origin of a coronary artery: A Congenital Heart Surgeons' Society study. 2019. J Thorac Cardiovasc Surg. 2019;158:822-834.e3 doi: 10.1016/j.jtcvs.2019.02.122

Presentation:
Meza, JM; Elias, ME; Wilder, T; O’Brien, JE; Kim, RW; Mavroudis, C; Williams, WG; Brothers, J; Cohen, M; McCrindle, BW. Exercise restriction is not associated with increasing body mass index over time in patients with coronary arteries of anomalous aortic origin: A report from the CHSS AAOCA registry. Presented at the 96th Annual Meeting of the American Association for Thoracic Surgery, May 17, 2016, Baltimore, MD.

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Aortic Valve Atresia (AVA)

  1. Jacobs ML, Blackstone EH, Bailey LL. Intermediate survival in neonates with aortic atresia: a multi-institutional study. The Congenital Heart Surgeons Society. J Thorac Cardiovasc Surg. 1998 Sep;116(3):417-31.

  2. Ashburn DA, McCrindle BW, Tchervenkov CI, Jacobs ML, Lofland GK, Bove EL, Spray TL, Williams WG, Blackstone EH. Outcomes after the Norwood operation in neonates with critical aortic stenosis or aortic valve atresia. J Thorac Cardiovasc Surg. 2003 May;125(5):1070-82.

  3. Stackhouse KA, McCrindle BW, Blackstone EH, Rajeswaran J, Kirklin JK, Bailey LL, Jacobs ML, Tchervenkov CI, Jacobs JP, Pettersson GB. Congenital Heart Surgeons' Society. Surgical palliation or primary transplantation for aortic valve atresia. J Thorac Cardiovasc Surg. 2020 Apr;159(4):1451-1461.e7. doi: 10.1016/j.jtcvs.2019.08.104. Epub 2019 Sep 25. PMID: 31740116.

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Aortic Valve Stenosis (AVS)

  1. Lofland GK, McCrindle BW, Williams WG, Blackstone EH, Tchervenkov CI, Sittiwangkul R, Jonas RA. Critical aortic stenosis in the neonate: a multi-institutional study of management, outcomes, and risk factors. Congenital Heart Surgeons Society. J Thorac Cardiovasc Surg. 2001 Jan;121(1):10-27.

  2. McCrindle BW, Blackstone EH, Williams WG, Sittiwangkul R, Spray TL, Azakie A, Jonas RA. Are outcomes of surgical versus transcatheter balloon valvotomy equivalent in neonatal critical aortic stenosis? Circulation. 2001 Sep 18;104(12 Suppl 1):I152-8.

  3. Hickey EJ, Caldarone CA, Blackstone EH, Williams WG, Yeh T Jr, Pizarro C, Lofland G, Tchervenkov CI, Pigula F, McCrindle BW; Congenital Heart Surgeons' Society. Biventricular strategies for neonatal critical aortic stenosis: high mortality associated with early reintervention. J Thorac Cardiovasc Surg. 2012 Aug;144(2):409-17, 417.e1. doi: 10.1016/j.jtcvs.2011.09.076. Epub 2012 Feb 11.

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Atrioventricular Septal Defect (AVSD)

  1. Jegatheeswaran A, Pizarro C, Caldarone CA, Cohen MS, Baffa JM, Gremmels DB, Mertens L, Morell VO, Williams WG, Blackstone EH, McCrindle BW, Overman DM. Echocardiographic definition and surgical decision-making in unbalanced atrioventricular septal defect: a Congenital Heart Surgeons' Society multiinstitutional study. Circulation. 2010 Sep 14;122(11 Suppl):S209-15. doi: 10.1161/CIRCULATIONAHA.109.925636.

  2. Overman DM, Baffa JM, Cohen MS, Mertens L, Gremmels DB, Jegatheeswaram A, McCrindle BW, Blackstone EH, Morell VO, Caldarone C, Williams WG, Pizarro C. Unbalanced atrioventricular septal defect: definition and decision making. World J Pediatr Congenit Heart Surg. 2010 Apr;1(1):91-6. doi: 10.1177/2150135110363024.

  3. Cohen MS, Jegatheeswaran A, Baffa JM, Gremmels DB, Overman DM, Caldarone CA, McCrindle BW, Mertens L. Echocardiographic features defining right dominant unbalanced atrioventricular septal defect: a multi-institutional Congenital Heart Surgeons' Society study. Circ Cardiovasc Imaging. 2013 Jul;6(4):508-13. doi: 10.1161/CIRCIMAGING.112.000189. Epub 2013 Jun 19.

  4. Meza JM, Devlin PJ, Overman DM, Gremmels D, Baffa G, Cohen MS, Quartermain MD, Caldarone CA, Pourmoghadam K, DeCampli WM, Fackoury CT, Mertens L. The Congenital Heart Surgeon's Society Complete Atrioventricular Septal Defect Cohort: Baseline, Preintervention Echocardiographic Characteristics. Semin Thorac Cardiovasc Surg. 2018 Feb 8. pii: S1043-0679(18)30011-X. doi: 10.1053/j.semtcvs.2018.02.004. [Epub ahead of print].

  5. Devlin PJ, Jegatheeswaran A, McCrindle BW, Karamlou T, Blackstone EH, Williams WG, DeCampli WM, Mertens L, Fackoury CT, Eghtesady P, Jacobs JP, Baffa JM, Fleishman CE, Dodge-Khatami A, Pizarro C, Pourmoghadam K, Cohen MS, Meyer DB, Overman DM. Pulmonary artery banding in complete atrioventricular septal defect. J Thorac Cardiovasc Surg. 2019 Sep 24. pii: S0022-5223(19)31941-5

  6. Connor P. Callahan, MD Anusha Jegatheeswaran, MD, PhD David J. Barron, MD David M. Overman, MD Brian W. McCrindle, MD, MPH and the Congenital Heart Surgeons' Society Atrioventricular Septal Defect Working Group. Association of atrial septal fenestration with outcomes after atrioventricular septal defect repair. The Journal of Thoracic and Cardiovascular Surgery September 07, 2021DOI:https://doi.org/10.1016/j.jtcvs.2021.06.067 CONGENITAL|ARTICLES IN PRESS

Presentation:
Meza, JM; Mertens, L; Baffa, G; Cohen, MS; Quartermain, MD; Gremmels, D; Fakoury, C; Caldarone, CA; Williams, WG; DeCampli, WM; Overman, DM. The CHSS Complete Atrioventricular Septal Defect Inception Cohort: Pre-Intervention Echocardiographic Characteristics. Presented at the American Association for Thoracic Surgery Centennial Meeting, May 2, 2017, Boston, MA.

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Background papers about the CHSS Center for Research and Quality

  1. Meza J, McCrindle BW, Blackstone EH, Caldarone CA, Williams WG, DeCampli WM. CHSS Kirklin/Ashburn Fellowship: Legacy and Promise
    https://www.ctsnet.org/article/chss-kirklinashburn-fellowship-legacy-and-promise

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CHSS Academic Impact – J. Jacobs

  1. CHSS Academic Impact Summary. Summary of CHSS Studies- by Dr. Jeffrey P. Jacobs. Version September 8, 2022 (Presented at CHSS Fall Work Weekend 2022)

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Coarctation of the Aorta

  1. Quaegebeur JM, Jonas RA, Weinberg AD, Blackstone EH, Kirklin JW. Outcomes in seriously ill neonates with coarctation of the aorta. A multiinstitutional study. J Thorac Cardiovasc Surg. 1994 Nov;108(5):841-51; discussion 852-4.

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Interrupted Aortic Arch (IAA)

  1. Jonas RA, Quaegebeur JM, Kirklin JW, Blackstone EH, Daicoff G. Outcomes in patients with interrupted aortic arch and ventricular septal defect. A multiinstitutional study. Congenital Heart Surgeons Society. J Thorac Cardiovasc Surg. 1994 Apr;107(4):1099-109; discussion 1109-13.

  2. Chin AJ, Jacobs ML. Morphology of the ventricular septal defect in two types of interrupted aortic arch. J Am Soc Echocardiogr. 1996 Mar-Apr;9(2):199-201.

  3. McCrindle BW, Tchervenkov CI, Konstantinov IE, Williams WG, Neirotti RA, Jacobs ML, Blackstone EH; Congenital Heart Surgeons Society. Risk factors associated with mortality and interventions in 472 neonates with interrupted aortic arch: a Congenital Heart Surgeons Society study. J Thorac Cardiovasc Surg. 2005 Feb;129(2):343-50.

  4. Konstantinov IE, Karamlou T, Blackstone EH, Mosca RS, Lofland GK, Caldarone CA, Williams WG, Mackie AS, McCrindle BW. Truncus arteriosus associated with interrupted aortic arch in 50 neonates: a Congenital Heart Surgeons Society study. Ann Thorac Surg. 2006 Jan;81(1):214-22.

  5. Konstantinov IE, Karamlou T, Williams WG, Quaegebeur JM, del Nido PJ, Spray TL, Caldarone CA, Blackstone EH, McCrindle BW; Congenital Heart Surgeons Society. Surgical management of aortopulmonary window associated with interrupted aortic arch: a Congenital Heart Surgeons Society study. J Thorac Cardiovasc Surg. 2006 May;131(5):1136-1141.e2.

  6. Jegatheeswaran A, McCrindle BW, Blackstone EH, Jacobs ML, Lofland GK, Austin EH 3rd, Yeh T, Morell V, Jacobs JP, Jonas RA, Cai S, Rajeswaran J, Ricci M, Williams WG, Caldarone CA, DeCampli WM. Persistent risk of subsequent procedures and mortality in patients after interrupted aortic arch repair: a Congenital Heart Surgeons' Society study. J Thorac Cardiovasc Surg. 2010 Nov;140(5):1059-75.e2. doi: 10.1016/j.jtcvs.2010.07.067.

  7. Anusha Jegatheeswaran, Marshall L. Jacobs, Christopher A. Caldarone, Paul M. Kirshbom, William G. Williams, Eugene H. Blackstone, William M. DeCampli, Kim F. Duncan, Linda M. Lambert, Henry L. Walters, Christo I. Tchervenkov, Brian W. McCrindle, Self-reported functional health status following interrupted aortic arch repair: A Congenital Heart Surgeons' Society Study. The Journal of Thoracic and Cardiovascular Surgery, Volume 157, Issue 4, 2019, Pages 1577-1587.e10, ISSN 0022-5223.

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Left Ventricular Outflow Tract Obstruction (LVOTO)

  1. Hickey EJ, Caldarone CA, Blackstone EH, Lofland GK, Yeh T Jr, Pizarro C, Tchervenkov CI, Pigula F, Overman DM, Jacobs ML, McCrindle BW; Congenital Heart Surgeons' Society. Critical left ventricular outflow tract obstruction: The disproportionate impact of biventricular repair in borderline cases. J Thorac Cardiovasc Surg. 2007 Dec;134(6):1429-36; discussion 1436-7. Epub 2007 Nov 8.

  2. Hickey EJ, Yeh T Jr, Jacobs JP, Caldarone CA, Tchervenkov CI, McCrindle BW, Lacour-Gayet F, Pizarro C. Ross and Yasui operations for complex biventricular repair in infants with critical left ventricular outflow tract obstruction. Eur J Cardiothorac Surg. 2010 Feb;37(2):279-88. doi: 10.1016/j.ejcts.2009.06.060. Epub 2009 Sep 17.

  3. Wilder TJ, McCrindle BW, Phillips AB, Blackstone EH, Rajeswaran J, Williams WG, DeCampli WM, Jacobs JP, Jacobs ML, Karamlou T, Kirshbom PM, Lofland GK, Ziemer G, Hickey EJ. Survival and right ventricular performance for matched children after stage-1 Norwood: Modified Blalock-Taussig shunt versus right-ventricle-to-pulmonary-artery conduit. J Thorac Cardiovasc Surg. 2015 Dec;150(6):1440-1452.

  4. Wilder TJ, McCrindle BW, Hickey EJ, Ziemer G, Tchervenkov C I, Jacobs ML, Gruber PJ, Blackstone EH, Williams WG, DeCampli WM, Caldarone CA and Pizarro C. Is a hybrid strategy a lower-risk alternative to stage 1 Norwood operation? J Thorac Cardiovasc Surg. 2016 Aug 31. S0022-5223(16)31041-8. doi: 10.1016/j.jtcvs.2016.08.021. [Epub]

  5. Meza, JM; Jaquiss, RDB; Anderson, BR; Moga, MA; Kirklin, JK; Williams, WG; McCrindle, BW. Current Practices in the Timing of Stage-2-Palliation: A Survey of the CHSS and ECHSA. World J Pediatr Congenit Heart Surg.2017 Mar;8(2):135-141. doi: 10.1177/2150135116677253. PMID: 28329463.

  6. Meza JM, Hickey EJ, Blackstone EH, Jaquiss RDB, Anderson BR, Williams WG, Cai S, Van Arsdell GS, Karamlou T, McCrindle BW. The Optimal Timing of Stage 2 Palliation for Hypoplastic Left Heart Syndrome: An Analysis of the Pediatric Heart Network Single Ventricle Reconstruction Trial Public Data Set. Circulation. 2017 Oct 31;136(18):1737-1748. doi: 10.1161/CIRCULATIONAHA.117.028481. Epub 2017 Jul 7. PMID: 28687711; PMCID: PMC5664211.
    Supplemental Material

  7. Meza JM, Slieker M, Blackstone EH, Mertens L, DeCampli WM, Kirklin JK, Karimi M, Eghtesady P, Pourmoghadam K, Kim RW, Burch PT, Jacobs ML, Karamlou T, McCrindle BW on behalf of the Congenital Heart Surgeons' Society (in press). A novel, data-driven conceptualization for critical left heart obstruction. Computer Methods and Programs in Biomedicine. 2018 Aug. doi: 10.1016/j.cmpb.2018.08.014.

  8. Paul J. Devlin, Brian W. McCrindle, James K. Kirklin, Eugene H. Blackstone, William M. DeCampli, Christopher A. Caldarone, Ali Dodge-Khatami, Pirooz Eghtesady, James M. Meza, Peter J. Gruber, Kristine J. Guleserian, Bahaaladin Alsoufi, Linda M. Lambert, James E. O'Brien, Erle H. Austin, Jeffrey P. Jacobs, Tara Karamlou, Intervention for arch obstruction after the Norwood procedure: Prevalence, associated factors, and practice variability. The Journal of Thoracic and Cardiovascular Surgery, Volume 157, Issue 2, 2019, Pages 684-695.e8, ISSN 0022-5223.

  9. Meza JM, Blackstone EH, Thuita L, Lowry A, Rajeswaran J, Kovach K, Caldarone CA, Kirklin JK, Jegatheeswaran A, DeCampli WM, Pourmoghadam K, Gruber P, Williams WG, McCrindle BW. The Dynamic Norwood Mortality Estimator: Characterizing Instantaneous Personalized Risk Trajectories for Infants after the Norwood Operation. Circulation. 2018 Jun. 2018;136:A11653.

  10. Slieker M, Meza JM, Devlin PJ, Burch PT, Karamlou T, DeCampli WM, McCrindle BW, Williams WG, Morgan CT, Fleishman C, Mertens L. Pre-intervention morphologic and functional echocardiographic characteristics of neonates with critical left heart obstruction - a Congenital Heart Surgeons Society (CHSS) inception cohort study. European Heart Journal - Cardiovascular Imaging. 2018 Oct. 2018. jey141, https://doi.org/10.1093/ehjci/jey141.

Presentations:
Wilder TJ, Hickey EJ, Ziemer G, Tchervenkov CI, Jacobs ML, Gruber PJ, Blackstone EH, McCrindle BW, Williams WG, DeCampli WM, Caldarone CA, Pizzaro C. Hybrid Alternatives to Norwood Stage-1 May Not Be a Lower Risk Alternative. American Heart Association Annual Meeting, Chicago, IL, 2014.

Wilder TJ, McCrindle BW, Phillips A, Blackstone EH, Jeevanantham R, Williams WG, DeCampli WM, Jacobs JP, Jacobs ML, Karamlou T, Kirshbom PM, Lofland GK, Ziemer G, Hickey EJ. Late survival and RV performance in matched children after Norwood: Norwood-BT vs Norwood-Sano. 95th American Association for Thoracic Surgery Annual Meeting, Seattle, WA, 2015.

Meza, JM and McCrindle, BW. Current Practices in Stage 2 Palliation for Critical LVOTO: A Survey of the CHSS and ECHSA. Presented at the 4th Joint Meeting of the ECHSA and CHSS, June 23, 2016, Venice, Italy.

Meza, JM; McCrindle, BW; Blackstone, EH; Karamlou, T; Scholl, F; Lodge, AJ; Gruber, PJ; Dodge-Khatami, A; Jacobs, JP; O’Brien. JE; Alsoufi, B; Caldarone, CA; Guleserian, KJ; Pourmoghadam, K; Eghtesady, P; Manning, P; Jaquiss, RDB. Comparing Survival Through Staged Procedures in the Norwood and Hybrid Pathways: A Report from the CHSS Center for Research and Quality. Presented at the 5th Scientific Meeting of the World Society for Pediatric and Congenital Heart Surgery, October 29, 2016, Abu Dhabi, UAE.

Meza, JM; Slieker, MG; Mertens, L; Blackstone, EH; Eghtesady, P; Pourmoghadam, K; Kirklin, JK; DeCampli, WM; Jacobs, ML; Karamlou, T; Burch, PT; Karimi, M; Pearl, J; Fuller, SJ; Mascio, C; McCrindle, BW. A novel, data-driven approach to classify critical Left Ventricular Outflow Tract Obstruction using pre-intervention echocardiographic measurements: A report from the Congenital Heart Surgeons’ Society Center for Research and Quality. Presented at the American Heart Association 2016 Scientific Sessions, November 15, 2016, New Orleans, LA.

Slieker, MG; Meza, JM; McCrindle, BW; Tchervenkov, C; Jacobs, ML; DeCampli, WM; Burch, PT; Mertens, L. Pre-intervention morphologic and functional echocardiographic characteristics of 651 neonates with critical left ventricular outflow tract obstruction. Presented at EuroEcho-Imaging 2016, December 9, 2016, Leipzig, Germany.

Meza, JM; Hickey, EJ; McCrindle, BW; Blackstone, EH; Anderson, BR; Overman, DM; Kirklin, JK; Caldarone, CA; Guleserian, KJ; Kim, RW; DeCampli, WM; Jacobs, ML; Mitchell, ME; Chai, PJ; Williams, WG; Jaquiss, RDB. The J. Maxwell Chamberlain Memorial Paper for Congenital Heart Surgery – The Optimal Timing of Stage-2-Palliation after the Norwood Operation: A Multi-Institutional Analysis from the Congenital Heart Surgeons’ Society. Presented at the 53rd Annual Meeting of the Society of Thoracic Surgeons, January 23, 2017, Houston, TX.

Devlin, PJ; McCrindle, BW; Eghtesady, P; Alsoufi, B; Blackstone, EH; Meza, JM; DeCampli, WM; Kirklin, JK; Jacobs, JP; Dodge-Khatami, A; Guleserian, KJ; O'Brien Jr., JE; Austin, III, EH; Gruber, PJ; Karamlou, T. Intervention for Arch Obstruction in the Interstage Period Following Norwood: Prevalence, Risk Factors, and Practice Variability. Presented at the 98th Annual Meeting of the American Association for Thoracic Surgery, April 29, 2018. San Diego, CA.

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Outcomes Analysis and Data Process for Clinical Decision Making

  1. Hickey EJ, McCrindle BW, Caldarone CA, Williams WG, Blackstone EH. Making sense of congenital cardiac disease with a research database: The Congenital Heart Surgeons' Society Center for Research and Quality. Cardiol Young. 2008 Dec;18 Suppl 2:152-62. doi: 10.1017/S1047951108002849.

  2. Karamlou T, McCrindle BW, Blackstone EH, Cai S, Jonas RA, Bradley SM, Ashburn DA, Caldarone CA, Williams WG. Lesion-specific outcomes in neonates undergoing congenital heart surgery are related predominantly to patient and management factors rather than institution or surgeon experience: A Congenital Heart Surgeons Society Study. J Thorac Cardiovasc Surg. 2010 Mar;139(3):569-577.e1. doi: 10.1016/j.jtcvs.2008.11.073. Epub 2009 Nov 11.

  3. Caldarone CA, Williams WG. The Congenital Heart Surgeons Society Datacenter: unique attributes as a research organization. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010;13(1):71-5. doi: 10.1053/j.pcsu.2010.01.007.

  4. Jacobs JP, Pasquali SK, Austin E, Gaynor JW, Backer C, Hirsch-Romano JC, Williams WG, Caldarone CA, McCrindle BW, Graham KE, Dokholyan RS, Shook GJ, Poteat J, Baxi MV, Karamlou T, Blackstone EH, Mavroudis C, Mayer JE Jr, Jonas RA, Jacobs ML. Linking the Congenital Heart Surgery Databases of the Society of Thoracic Surgeons and the Congenital Heart Surgeons' Society: Part 1—Rationale and Methodology. World J Pediatr Congenit Heart Surg. 2014 Apr; 5(2): 256–271. doi: 10.1177/2150135113519454.

  5. Jacobs JP, Pasquali SK, Austin E, Gaynor JW, Backer C, Hirsch-Romano JC, Williams WG, Caldarone CA, McCrindle BW, Graham KE, Dokholyan RS, Shook GJ, Poteat J, Baxi MV, Karamlou T, Blackstone EH, Mavroudis C, Mayer JE Jr, Jonas RA, Jacobs ML. Linking the congenital heart surgery databases of the Society of Thoracic Surgeons and the Congenital Heart Surgeons' Society: part 2--lessons learned and implications. World J Pediatr Congenit Heart Surg. 2014 Apr;5(2):272-82. doi: 10.1177/2150135113519455.

Presentation:
Wilder TJ, McCrindle BW, Hickey EJ, DeCampli WM, Williams WG, Caldarone CA, Blackstone EH. Making sense of longitudinal data: changes in ventricular function in babies with a functional single ventricle. World Society for Pediatric and Congenital Heart Surgery 4th Scientific Meeting. São Paulo, Brazil, July 2014.

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Pulmonary Atresia with Intact Ventricular Septum (PAIVS)

  1. Hanley FL, Sade RM, Blackstone EH, Kirklin JW, Freedom RM, Nanda NC. Outcomes in neonatal pulmonary atresia with intact ventricular septum. A multiinstitutional study. J Thorac Cardiovasc Surg. 1993 Mar;105(3):406-23, 424-7; discussion 423-4.

  2. Hanley FL, Sade RM, Freedom RM, Blackstone EH, Kirklin JW. Outcomes in critically ill neonates with pulmonary stenosis and intact ventricular septum: a multiinstitutional study. Congenital Heart Surgeons Society. J Am Coll Cardiol. 1993 Jul;22(1):183-92.

  3. Ashburn DA, Blackstone EH, Wells WJ, Jonas RA, Pigula FA, Manning PB, Lofland GK, Williams WG, McCrindle BW; Congenital Heart Surgeons Study members. Determinants of mortality and type of repair in neonates with pulmonary atresia and intact ventricular septum. J Thorac Cardiovasc Surg. 2004 Apr;127(4):1000-7; discussion 1007-8.

  4. Karamlou T, Poynter JA, Walters HL 3rd, Rhodes J, Bondarenko I, Pasquali SK, Fuller SM, Lambert LM, Blackstone EH, Jacobs ML, Duncan K, Caldarone CA, Williams WG, McCrindle BW. Long-term functional health status and exercise test variables for patients with pulmonary atresia with intact ventricular septum: a Congenital Heart Surgeons Society study. J Thorac Cardiovasc Surg. 2013 Apr;145(4):1018-25; discussion 1025-7. doi: 10.1016/j.jtcvs.2012.11.092. Epub 2013 Jan 29.

Presentation:
Karamlou T, Poynter JA, Walters HL, Rhodes J, Bondarenko I, Pasquali SK, Fuller SM, Lambert L, Blackstone EH, Jacobs ML, Duncan K, Caldarone CA, Williams WG, McCrindle BW. Long-term Functional Health Status and Exercise Test Variables for Patients with Pulmonary Atresia with Intact Ventricular Septum: A Congenital Heart Surgeons’ Society Study. AATS Annual Meeting April 30, 2012.

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Tricuspid Atresia (TA)

  1. Karamlou T, Ashburn DA, Caldarone CA, Blackstone EH, Jonas RA, Jacobs ML, Williams WG, Ungerleider RM, McCrindle BW; Members of the Congenital Heart Surgeons' Society. Matching procedure to morphology improves outcomes in neonates with tricuspid atresia. J Thorac Cardiovasc Surg. 2005 Dec;130(6):1503-10. Epub 2005 Oct 26..

  2. Wilder TJ, Ziemer G, Hickey EJ, Gruber PJ, Karamlou T, Kirshbom PM, Blackstone EH, DeCampli WM, Williams WG, McCrindle BW. Surgical management of competing pulmonary blood flow affects survival before Fontan/Kreutzer completion in patients with tricuspid atresia type I. J Thorac Cardiovasc Surg. 2015 Nov;150(5):1222-30.e7. doi: 10.1016/j.jtcvs.2015.05.067. Epub 2015 Jun 6.

  3. Callahan CP, Jegatheeswaran A, Barron DJ, Husain SA, Eghtesady P, Welke KF, Caldarone CA, Overman DM, Kirklin JK, Jacobs ML, Lambert LM, DeCampli WM, McCrindle BW. Factors associated with mortality or transplantation versus Fontan completion after cavopulmonary shunt for patients with tricuspid atresia: a Congenital Heart Surgeons' Society Analysis. J. Thorac Cardiovasc Surg.

Presentation:
Wilder TJ, Ziemer G, Hickey EJ, Gruber PJ, Karamlou T, Kirshbom PM, Blackstone EH, DeCampli WM, Williams WG, McCrindle BW. Surgical management of competing pulmonary blood flow influences survival before fontan operation in children with tricuspid atresia. European Association for Cardio-Thoracic Surgery 28th Annual Meeting. Milan, Italy. October 2014.

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Pulmonary Conduit (PC)

  1. Karamlou T, Blackstone EH, Hawkins JA, Jacobs ML, Kanter KR, Brown JW, Mavroudis C, Caldarone CA, Williams WG, McCrindle BW; Pulmonary Conduit Working Group for the members of the Congenital Heart Surgeons Society. Can pulmonary conduit dysfunction and failure be reduced in infants and children less than age 2 years at initial implantation? J Thorac Cardiovasc Surg. 2006 Oct;132(4):829-38. Epub 2006 Sep 1.

  2. Hickey EJ, McCrindle BW, Blackstone EH, Yeh T Jr, Pigula F, Clarke D, Tchervenkov CI, Hawkins J; CHSS Pulmonary Conduit Working Group. Jugular venous valved conduit (Contegra) matches allograft performance in infant truncus arteriosus repair. Eur J Cardiothorac Surg. 2008 May;33(5):890-8. doi: 10.1016/j.ejcts.2007.12.052. Epub 2008 Mar 4.

  3. Poynter JA, Eghtesady P, McCrindle BW, Walters HL 3rd, Kirshbom PM, Blackstone EH, Husain SA, Overman DM, Austin EH, Karamlou T, Lodge AJ, St Louis JD, Gruber PJ, Ziemer G, Davies RR, Jacobs JP, Brown JW, Williams WG, Tchervenkov CI, Jacobs ML, Caldarone CA; Congenital Heart Surgeons' Society. Association of pulmonary conduit type and size with durability in infants and young children. Ann Thorac Surg. 2013 Nov;96(5):1695-701; discussion 1701-2. doi: 10.1016/j.athoracsur.2013.05.074. Epub 2013 Aug 22.

  4. Callahan C, Jegatheeswaran A, Blackstone EH, Karamlou T, Baird C, Ramakrishnan K, Herrmann J, Brown JW, Nelson JS, Polimenakos A, Lambert LM, Eckhauser AW, Kirklin JK, DeCampli WM, Aghaei N, St. Louis JD, McCrindle BW, Congenital Heart Surgeons’ Society Pulmonary Conduit Working Group; Time-related risk of pulmonary conduit re-replacement: a Congenital Heart Surgeons' Society Study Ann Thorac Surg. 2021 Jun; S0003-4975(21)00979-6. doi: 10.1016/j.athoracsur.2021.05.024. Online ahead of print.

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Transposition of the Great Arteries (TGA)

  1. Trusler GA, Castaneda AR, Rosenthal A, Blackstone EH, Kirklin JW. Current results of management in transposition of the great arteries, with special emphasis on patients with associated ventricular septal defect. J Am Coll Cardiol. 1987 Nov;10(5):1061-7

  2. Castaneda AR, Trusler GA, Paul MH, Blackstone EH, Kirklin JW. The early results of treatment of simple transposition in the current era. J Thorac Cardiovasc Surg. 1988 Jan;95(1):14-28.

  3. Norwood WI, Dobell AR, Freed MD, Kirklin JW, Blackstone EH. Intermediate results of the arterial switch repair. A 20-institution study. J Thorac Cardiovasc Surg. 1988 Dec;96(6):854-63.

  4. Kirklin JW, Blackstone EH, Tchervenkov CI, Castaneda AR. Clinical outcomes after the arterial switch operation for transposition. Patient, support, procedural, and institutional risk factors. Congenital Heart Surgeons Society. Circulation. 1992 Nov;86(5):1501-15.

  5. Turley K, Verrier ED. Intermediate results from the period of the Congenital Heart Surgeons Transposition Study: 1985 to 1989. Congenital Heart Surgeons Society Database. Ann Thorac Surg. 1995 Sep;60(3):505-10.

  6. Williams WG, Quaegebeur JM, Kirklin JW, Blackstone EH. Outflow obstruction after the arterial switch operation: a multiinstitutional study. Congenital Heart Surgeons Society. J Thorac Cardiovasc Surg. 1997 Dec;114(6):975-87; discussion 987-90.

  7. Wells WJ, Blackstone E. Intermediate outcome after Mustard and Senning procedures: A study by the Congenital Heart Surgeons Society. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2000;3:186-197.

  8. Culbert EL, Ashburn DA, Cullen-Dean G, Joseph JA, Williams WG, Blackstone EH, McCrindle BW; Congenital Heart Surgeons Society. Quality of life of children after repair of transposition of the great arteries. Circulation. 2003 Aug 19;108(7):857-62.

  9. Williams WG, McCrindle BW, Ashburn DA, Jonas RA, Mavroudis C, Blackstone EH; Congenital Heart Surgeon's Society. Outcomes of 829 neonates with complete transposition of the great arteries 12-17 years after repair. Eur J Cardiothorac Surg. 2003 Jul;24(1):1-9

  10. Jegatheeswaran A, Devlin PJ, DeCampli WM, Welke KF, Williams WG, Blackstone EH, Fuller S, Jacobs ML, Mussatto KA, Woods RK, McCrindle BW. Longitudinal functional health status in young adults with repaired dextro-transposition of the great arteries: A Congenital Heart Surgeons' Society study. J Thorac Cardiovasc Surg. 2019 Aug 22. pii: S0022-5223(19)31610-1

  11. Devlin PJ, Jegatheeswaran A, Williams WG, Blackstone EH, DeCampli WM, Lambert LM, Mussatto KA, Prospero CJ, Bondarenko I, McCrindle BW. Late Survival and Patient-Perceived Health Status of the Congenital Heart Surgeons' Society dextro-Transposition of the Great Arteries Cohort. Ann Thorac Surg. 2019 Nov;108(5):1447-1455

Presentations:
Devlin PJ, Jegatheeswaran A, Williams WG, Blackstone EH, DeCampli WM, Lambert LL, Mussatto KA, Prospero CJ, Bondarenko I, McCrindle BW. Late Survival and Patient-Perceived Health Status of the CHSS dextro-Transposition of the Great Arteries Cohort. STS Annual Meeting. San Diego, CA. 1/27/2019.

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UVR-SA Decision Tool (Critical Aortic Stenosis Calculator)

Currently under reconstruction

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